Wednesday, July 30, 2008

Not doing enough

My inner monster that tells me I am notdoingenough is alive and flourishing
I fed him well last night with guilt and insomania - the other truth is I am spending a load of time on the internet and also am watching some TV
for the past two days I have really done a rotten job in the evening of having some meaningful interaction
Here are my excuses
  1. Too bloody hot and muggy outside ( I suppose I could do things inside)
  2. R just wants to swing and he will usually fall asleep if I swing him and then wake up BAD tempered and grumpy -And then he will not sleep half the night ( avoid the swing - what about swinging after battime at 9 with some citronella???- Hmmm there is an idea )
  3. With no sleep in the night and a 6 am wake up time I am usually tired too ( sleep on time )
  4. With R at home all day the house is a real mess( I guess I could screw the mess and ignore it - which as I am a flylady right now is Impossible to do )

Sunday, July 27, 2008

Not normal ..just perfect

I suddenly realized today why moms of older kids on the spectrum look a little resigned - not necessarily sad - but as though they are bracing themselves
As R gets older - in another 100 or so days( that sounds better than 3 months doesn't it ?) he will be 4 years old - I am more and more certain that we wont be one of those indistinguishable ones.
Soon people will stop telling me "oh he is still so young"
I am really not dreaming of Mainstream schooling. I do think I will have to read up on Special Ed laws. We have even talked about homeschooling at some point becasue I dont think that either Dh or I have a particular aptitude for fighting with the school system - nor do we really want to
You can wrangle out 30 more minutes of services but if they dont already ... can you get them to care
Dont think however that I am too despondent .
He HAS learned a lot
And sometimes I also think that while he may not be normal but he is still quite perfect just the way he is

Friday, July 25, 2008

Repeat of day before yesterday
No therapist today either
Weather was atleast better than yesterday

Thursday, July 24, 2008

OUr therapist called in sick last evening
And why does it always have to be last minute - like at the time she is supposed to come -
At 6 which is the therapy time she will realise that she is sick !!!!
Basically what it tells me is that she forgot or does not feel like it !
Why not give some advance notice
- it always discombobulates me when they do that as it puts more pressure on me to make the evening productive for R and also usually I do my stuff while the therapist is here - like finish up dinner or hop on the treadmill
I did some follow the lead with him and went and swung with him etc and then when he took a bath I cleaned up the house and made some dinner

Wednesday, July 23, 2008

The joy of pointing

My son can point!
OMG
What joy !
He used to point in order to answer qyuestions in his VBA but now he points to tell me what to do !!
Like today I went home for lunch -
When he saw me through the window - where he was sitting on the couch he started bouncing up and down -
I put my hands on the window - so he would put his hands on from the other side
But
He pointed to me - and then pointed to the door
You ! Get in the door !!!
My cup of happiness runneth over
Thank you god

Parent Therapy

oh yes and I meant to write about what we did last evening
Flashcards from Bumble bee - Tried to get him to pronounce the beginning sounds of all the words
Rough housing and tickling
Walking and swinging ourside - following the lead with that

Mischief

Stimminess in the evening ( due to cheese Quesadilla in the afternoon?)
He was so cute last night - I was tickling and he was running away and hiding behind his Dad giggling away and then coming back for more tickles
- Then in the night - I had turned some sleepy music on and he thought I was asleep so he ran giggling to the boom box and took the CD out and came back to bed hugging me tight and literally shaking with silent laughter
He is such a delight - he has never hidden behind his Dad before like that and he has not been deliberately mischievious ever
In the evening when we were taking a walk and encountened MRs H and Mrs C who are soooo sweet and very nice to him always he looked around them with unseeing eyes and refuse to ackknowledge their presence - let alone say his prompted Hi

Tuesday, July 22, 2008

No dairy and wanted to say Simminess is still down - Fingers crossed

Monday, July 21, 2008

Love affair with FOUR

I just realised why DS loves the word FOUR - he writes this with Foam letters on the side of the bathtub - he was touching each letter and then looking at me expectantly
I thought he wanted me to sound out the words Phoneteically - then he startted touching the letters with the number of fingers
one finger on F
two fingers in O
etc
And then I realised
PERFECT symmetry
A four letter word that means FOUR
Its the only one that does that
Learned something new today
When I went home for lunch DH said he was far less stimmy than yesterday
- no cheese today so far - but its not like he has cheese for breakfast on the other days either
But it was really nice to see him calm and collected rather than simmy and disoriented

Sunday, July 20, 2008

Is Dairy the evil

R has been so stimmy these days- lots of odd expressions and hand flapping !!!!
I wonder why the great leap we saw the first two weeks have reduced a little
The vocalizations are still there - in addition - we are getting a lot of accurate pointing 0- pointing to a thing to want it
But the general "with-it"ness is much less
And the stiminess is much more
Anyway we have also been giving him Pizza a lot these past few weeks- that too with oduble cheese and turns out that Dr Neubrander recommends not to do that
We will try stopping that ( no t eliminating dairy ) but reducing double cheese
And I will record if there is any change in behavior

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