Feeling refreshed
Being away for 4 weeks was REALLY refreshing.
I made it a point to not check email or do anything work related ( probably one of the first vacations when I have done this)
Its not that India was necessarily relaxing ( traveling with R rarely is + we spend almost 8 days in transit). But simply occupying your mind a 100% with something else is refreshing.
When I am in my regular life, i forget that work is a part of my life- not my whole life. On the plane back, I look at R lolling on his seat and I swear that I am going to try and remember this simple cliche that I have lost sight of.
Getting back into the routine
DH and I discussed how much of a routine our regular life is in when we are in Seattle. It takes us a long time to get over jet lag ( almost 10 days) but the routine is a relief.
Plus its nice to have our village again. Without his therapists, we are the only friends for R and it is quite exhausting ( especially in a time where we want to go around, shop and meet all our friends)
Relearning old lessons
I find myself finally able to get into all my old habits and routnes-
Still sick
Had a depressing call with R’s doctors – basically his labs were quite bad. He has inflammation still
If we are lucky – he may have simply picked up an infection while traveling and if we are not lucky – this means that the Remicade( magical medicine) has stopped working quite effectively.
I dont hold out much hope.I know what the answer will be even without the tests.
Each time in the past that DH and I have looked at two possibilities its always the more worse one that R has - ( is he deaf or does he have autism, is it motivational or is it apraxia, is it a bug or is it crohns? So many doctors offices we have sat in and DH and I hear over and over, that its always the harder road for this most precious innocent child!)
I know his tests will be a pain to do and when the results are back - there will be no easy fix of antibiotics
( Indeed this turns out to be true -and the following days show that he has no parasites and that his body is starting to develop antibodies to the magic medicine- which happens in 1 out of 10 cases)
This makes me want to cry - why does our sweet child have so much difficulty in life?
I think you all know i work for Microsoft in Advertising
For the Superbowl - Microsoft made an ad about how folks with ALS are using technology to communicate.
On the day that Superbowl airs, the facebook page of Microsoft is simply taken over by the ALS folks asking about the technology that Steve Gleason used in the ad. ( BTW Microsoft has responded to each facebook comment)
I read their stories with my office door shut, tears rolling down my cheeks.
People describing how "ALS is taking something from me every day" , or this request " can you send me this software .. I got diagnosed with ALS recently and when the time comes that I can no longer speak, I want to use this eye tracking software to communicate"
Truly there is no end to the difficulties that life can bring.
But we must "rise to life's challenges" like the Duchess said in Downton abbey today.
One of my uncles is a very religious and erudite person - meditates and prays everyday. I asked him what explanation does religion have for the suffering of our children.
He assures me that there is no explanation - that after all his study he has found that the answer is simple - make the most of whatever you have
As I try to reconcile with the new challenges in my life, his simple words uttered from a sunny Dehradun terrace come to me often.
That is my resolve for this year - to make the most of life.
That, and to be brave.
Being away for 4 weeks was REALLY refreshing.
I made it a point to not check email or do anything work related ( probably one of the first vacations when I have done this)
Its not that India was necessarily relaxing ( traveling with R rarely is + we spend almost 8 days in transit). But simply occupying your mind a 100% with something else is refreshing.
When I am in my regular life, i forget that work is a part of my life- not my whole life. On the plane back, I look at R lolling on his seat and I swear that I am going to try and remember this simple cliche that I have lost sight of.
Getting back into the routine
DH and I discussed how much of a routine our regular life is in when we are in Seattle. It takes us a long time to get over jet lag ( almost 10 days) but the routine is a relief.
Relearning old lessons
I find myself finally able to get into all my old habits and routnes-
- My flylady routine of cleaning the kitchen in 15 minutes
- Listening to mystery stories on my phone while I do household chores ( I am re-listening to the Hamish McBeth series - a series about an unambitious police officer and its so different than the people I am around all day that its a lovely bit of escapism
- Looking for little pleasures in the day and connecting with DH and myself. DH and I are back to our date lunches on Saturday and taking walks on the weekend when his therapist is around
- Have a day of no-work every week - we try to finish laundry on Friday and cooking on Saturday - so Sunday can be devoted to family time
- Getting on a low carb diet and starting to walk( just 2 miles everyday but its a start)
Still sick
Had a depressing call with R’s doctors – basically his labs were quite bad. He has inflammation still
If we are lucky – he may have simply picked up an infection while traveling and if we are not lucky – this means that the Remicade( magical medicine) has stopped working quite effectively.
I dont hold out much hope.I know what the answer will be even without the tests.
Each time in the past that DH and I have looked at two possibilities its always the more worse one that R has - ( is he deaf or does he have autism, is it motivational or is it apraxia, is it a bug or is it crohns? So many doctors offices we have sat in and DH and I hear over and over, that its always the harder road for this most precious innocent child!)
I know his tests will be a pain to do and when the results are back - there will be no easy fix of antibiotics
( Indeed this turns out to be true -and the following days show that he has no parasites and that his body is starting to develop antibodies to the magic medicine- which happens in 1 out of 10 cases)
This makes me want to cry - why does our sweet child have so much difficulty in life?
I think you all know i work for Microsoft in Advertising
For the Superbowl - Microsoft made an ad about how folks with ALS are using technology to communicate.
On the day that Superbowl airs, the facebook page of Microsoft is simply taken over by the ALS folks asking about the technology that Steve Gleason used in the ad. ( BTW Microsoft has responded to each facebook comment)
I read their stories with my office door shut, tears rolling down my cheeks.
People describing how "ALS is taking something from me every day" , or this request " can you send me this software .. I got diagnosed with ALS recently and when the time comes that I can no longer speak, I want to use this eye tracking software to communicate"
Truly there is no end to the difficulties that life can bring.
But we must "rise to life's challenges" like the Duchess said in Downton abbey today.
One of my uncles is a very religious and erudite person - meditates and prays everyday. I asked him what explanation does religion have for the suffering of our children.
He assures me that there is no explanation - that after all his study he has found that the answer is simple - make the most of whatever you have
As I try to reconcile with the new challenges in my life, his simple words uttered from a sunny Dehradun terrace come to me often.
That is my resolve for this year - to make the most of life.
That, and to be brave.