Every day when I crack capsules of supplements, like eggs to mix into R's food, I cannot help but wonder if any of it makes any difference at all
While R continues to make progress its really not the kind of meteoric progress that I hear other parents talk about.( you sometimes hear parents whose kids will start talking within a month of starting DAN – this has not been our experience at all )
A little history on our biomedical intervention.
We have been doing some DAN since when R was 3.5 years
We did a very strict GF CF as soon as R was diagnosed at 2.5 years but showed no dramatic improvement.
DH ( especially ) and I are not the types to jump onto any bandwagon and while evaluation support options for R we have been VERY careful to look at the basic principle of- first do no harm.
Just to rule thing out in March of 2008 we did the French Porphyrin test
And found to our astonishment that R had extremely high mercury toxicity. Where all this mercury came from is a mystery as most vaccines are thimerosol free since 2002 and we do not eat fish at all .
One of the theories is really that mercury is everywhere, just some children have an inability to excrete it and they get developmental disorders
Anyway we went down the route of DAN- we went to really great MD who is a pediatrician with an autistic child - and found that R had
- Several food intolerances including strong intolerance to wheat
- And Mercury
Our DAN intervention comprises
Mostly Gluten Free
Nystatin for Yeast
And a number of supplements that help the body get more efficient at excreting mercury – MB 12, Enzymes and Probiotics,, Mercury free fish oil , TMG and Taurine
But NO Chelation – nothing drastic like that . Just the word Chelation makes me sweat bullets.
Well we just retested for mercury
Its fallen and its almost normal range . I don't know if the mercury caused his regression or not
But I am glad its gone
We are thinking of having biomedical treatment for my son but DAN doctors are so expensive and not covered by my insurance.
My son is a picky eat as it is and I fear if I remove food he like from his diet he will starve.
Huriya look for a reglular MD - ours is a regular MD and was thus covered by insurance
Wow! Isn't it great to see the test results of all that time and effort in his diet and making sure he took all those supplements! Here's to the normal results!!! Sounds like a great doctor too!
That's great! This was interesting and informative. We never did any of this with Daniel because we're sure his Autism is genetic...but I know that Autism covers such a broad spectrum in so many ways...
We also think R's autism has a strong genetic component - there are several members on my dad's side who could be diagnosed with Asperger's- we think it was mercury toxicity that adds to the other symptoms he has like Apraxia and Sensory Differences
Interesting. Thanks. =) It's the same here, with Aspergers most likely on his dad's side...and I know S has it. I think I might bring some sensory issues into, too. I SO understand a lot of those.
I read a thing not too long about about a study that found traces of mercury in high fructose corn syrup manufacturing plants. HFCS is in like practically everything these days...
What a great report! We have seen good response to diet and supplements and are actually just now looking into metal toxicity.
So glad you are seeing such good progress. :)
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