Three years ago today in a bleak office - we learned that R had Autism
The doctor was stupid and insensitive.
He was telling us about Autism while telling R not to play with the blinds
We were shocked
Like I mentioned, his office was bleak
He had a large painting of a child wandering a black & white people-less world- all alone .
I suppose the artist was trying to show how lonely an autistic child is
He handed us a book to read over the weekend ( for it was Friday evening and I suppose he was in a rush to get on with his weekend )
Full of outdated statistics ( like 73% of Autistic children have cognitive damage ) and full of dire prognostications, "The world of the Autistic child " is probably one of the worst books for a parent to start learning about Autism
That weekend we felt like we had come undone
In the days that followed, our thoughts were dark and bleak
We kept expecting R to get worse and worse!
One phrase from the book would run on "repeat" in my mind -
"As the disorder unfolds....."
Would he become a child that would disengage from us and rock in a corner ?
But about a few months into the journey we finally mustered up the courage to ask our Early Intervention Co-ordinator
"How much worse will it get?"
Her answer was such a relief
" You have already been through the worst " she said " he will keep getting better and better now "
That was our turning point
I had so many questions then. Such fear
So much has changed
From an obsession - Autism has become an implicit part of our life .
Sometimes I think back over my life
There was once a time when I did not know what Autism was.
It seems impossible -
Like another life -belonging to another person.
And in many ways that is true
Three years ago today, I spend all night crying .
How different tonight is- I think while putting R to bed - with his arms around my neck !
His last words before drifting off were a sleepy happy coo of "Mother .. Mother ..." whispered against my neck.
Bliss . Peace. Contentment
Rather than crush me- as I thought it would
Its like the kaliedoscope of my vision has been shaken by the hand of fate.
My perspective has shifted
But life is in sharper brighter color
And I am loving what I see.
Dear Reader I have been absent without excuses and now I am back just plunging you back into the excruciating minutiae of my life witho...
Foreword The absence of pretend play skills is an indicator of autism. Many developmental models talk about the importance of pretend p...
R has always been one of those children who loves phyical touch I suspect there is a sensory basis to this I think he could not feel his...