Monday, January 14, 2008

Truly I am not in crisis mode any more – I do feel a pinch when I will hear a child much younger than Rohan chattering away and their mom/dad telling them to be quiet- but most of the time I just don’t compare –

And surprisingly many times I compare proudly – Last month a friend had come with two NT kids – one of them is Rohan’s age and I was bracing myself – but her kids though wonderful were just sooooo demanding and noisy and when they left my main thought – believe it or not was -“I don’t know how she does it “. I don’t bother about all the evaluations much either –

Earlier this month we were at the first meeting for preschool and two of the evaluators said two totally different things – one whom he liked and performed well for said he was amazingly bright and knew colors , shapes, numbers etc – the other said he was cognitively really low functioning and did not in fact know colors, shapes numbers the alphabet. ( he knows them all by the way and points them all out correctly when he is in the mood)

Yesterday DH and R met his neurologist ( we meet her every 6 months just to show her how Rohan is doing ) and she predicts that he will be a savant ( genius with some special skill ) . When two skilled professionals can evaluate him- within a matter of weeks - as a genius and as cognitively low ( read retarded ) – I don’t put too much weight on what any of them say – I think nobody knows and they are all making educated guesses. What I do know is that - I am not going to let anyone else define and classify Rohan and tell us what he will or will not do. I don’t see anybody making those predictions for NT kids – like your kid is so defiant and aggressive – in 20 years he will surely be in jail and doing drugs – why is the intense scrutiny reserved for those kids who are not the norm .
I truly hope for him to do great and have a happy good life and be independent one day !

Well enough of the philosophy – looks like I am not capable of brevity even in an email

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Floortime Lite Mama

On my life as the mother of an adorable 5 year old with Autism and Apraxia