Tuesday, December 8, 2009

To take joy in our children

Little C who is 4 years old  is styling my hair  with her play set is asking me a question

What color do you want your hair to be? You can choose pink or purple? 

Are those my only two options? I ask

Yes ! she nods solemnly...

 "You should choose purple" she further  advises - after taking my skin color and clothes into account!

"Will you come visit me to touch up my hair? I ask

"I can't "she answers "I dont know how to drive quite yet "

At this, we all burst into laughter

We are at a friends house . Her  mom - is expecting a second child in January

Last year she and her husband were considering having another child - She is older ( early 40's though she looks very young )

She told us that she almost decided not to - for fear that something could go wrong


It  is true

Our life is very good indeed .

Saturday  was a snow day.

We dont get a lot of snow here in TN. But we deeply enjoy what we do get

Snow is always pretty

But when you see it through R's eyes-  snow is  magic .

Our ordinary neighborhood is a land of enchantment

Everybody is inside their houses

The road is empty except for a dancing R

He points to the trampoline

The trampoline is covered in snow.

I patiently explain we can not

R persists

I tell him to use his words and he says  "Puck bee upp"( pick me up )

Unable to resist the spoken word - I pick him up and put him in the trampoline

"Kum Iside"( come inside) he beckons to me and though I have pulled my back this morning - I am unable to resist

And so we do

We jump on the trampoline, slipping and sliding

But somehow not falling


One of the things,  special needs mommies struggle most with,  is the thoughts around what might have been.

They imagine their child without the disability and with the struggles and it can break your heart.
Further, its easy to be around children like C - hear their adorable prattle - and to be filled with wistfulness

But there is a big  problem with that

That problem is that not only does it stop you from enjoying other children , but worse,  it blinds you to the beauty of the child you do have

As I am picking up R's babies--- doing my put-everything -in-place rituals of the night -(  Linny and Tuck and the unattractive but oddly adorable Backyardigans) - I think  of the world that R has opened up for me!

A world  where Turtles rescue Dinosaurs, and rocket ships with little children in them fly

Where my plebian neigbourhood is a wonderland just because of snow ,

Where our 18 dollar Walmart christmas tree with its tawdry jewels is a thing of promise
Where you jump on tramplines and swimming pools -come rain and snow

Where being in an airplane is a privilege

Where, I ,  myself have been reinvented

For when I look at myself through R's eyes I do not see an ordinary, weak person

I see a strong and  kind woman .. a person both deeply beloved and capable of extraordinary love

The big fallacy is that life after a special needs child is doomed

But  this life of mine  is proof that it can be full of joy -if you open your heart to the world that your child  will create for you

A special needs child ( or indeed any child ) can be your special purpose child .

"Nothing is good or bad .. its thinking that makes it so " says Shakespere.

"Shee Mother "( sleep with mother ) bargains R craftily from the bathtub

( his Dad usually puts him to bed but R is sulking due to being scolded for leaving the bathtub -streaking through the house wet  )

I get ready for his performance extraordinaire .

For R is able to produce tears on demand. I am not disappointed

After none of his tactics work - he holds my face and puts his nose to mine - looking into my eyes - assessing my resolve

"Shee mother" he coos - one last try - rubbing his velvety cheek on my face.

I hug the great fortune that being R's mother is to myself- revelling in the sheer delicousness of his ways- even as I tell him "Shee Pa" ( sleep with Papa)

"Dont worry about us " , I tell our acquantances with NT kids who see us as hardworking parents with the onerous task of taking care of a handicapped child " we are very happy "

Though they look unconvinced - unable to imagine that we mean it- its the truth

This child - this life - is no burden

This child and this life  is a gift

15 comments:

blackknightsbrood said...

"But this life of mine is proof that it can be full of joy -if you open your heart to the world that your child will create for you"

This is truth.

When we see our kids for who they are and all they offer, when we climb up on the snowy trampolines and meet them there, we will find the joy that is ours waiting to be claimed.

(Linny,Tuck, Tasha, Uniqua, et al live here too)!

Niksmom said...

Beautiful. Simply beautiful.

Julie said...

Such good reminders. Thank you. =) I have been trying to slow down a little and instead of just going through our day the way I think things should be done, to see things more through Daniel's eyes. When I am able to do that- to jump into his world with both feet, we really connect. I miss that.

Lisa said...

K,

Wow your words touched me so.
How your words made me weep happy tears, becuase I "get it."
I am privileged reading your words.

Lisa

renu said...

Sometimes things get a bit much to handle..but this sure puts them in perspective..thank you.

Bonsky said...

Such a beautiful thought on parenting and life. Enjoy every moment and most importantly allow yourself to enjoy every moment. How much of life's enjoyment gets tangled up in how things should be rather than simply how they are? How will I survive without your thoughtful post? I will miss you R!

Lyndsey said...

I just love you. :)

Laura said...

beautiful and inspiring. And I couldn't agree more.

rhemashope said...

What an unbelievably beautiful and true post. This is one I will refer back to over and over again, especially when I'm tempted to dwell on the "what might have been."

Indeed, being R's mother is a fortune. And I, too, have been reinvented and for that I am truly grateful.

I'm so blessed by your writing and your wisdom.

robin said...

So true...

Is R jumping barefoot in the snow?!?

Nothing can stop him from his beloved activity with Mommy!

lonestar said...

"This child and this life is a gift"

Absolutely!

And I totally hear you about the persistence thing... my guys can be very persuasive when they get their mind set on something, and if we had a trampoline they'd probably insist on jumping rain or shine too :).

Mr. Daddy said...

K, you continually inspire and humble me with the way you look at life...

Your post reminds me of something Moat Gandhi once said:
"Any change or reform you make is going to have consequences you don’t like….We must become the change we want to see…."

Your becoming that change is a beautiful thing to see...

Thanks for sharing

Hopeful Parents said...

K -- could you please email me when you have a chance? I can't seem to find a way to contact you directly. writehopefulparents at gmail dot com.

Thank you!

lonestar said...

Just stopped by to say hello, hope all is well!

Territory Mom said...

Just checking in with you. This is such a beautiful post. Funny, how I have a happier life than most people I know. Its all how you look at things. Have a great holiday season. Love and best wishes!!!

Floortime Lite Mama

On my life as the mother of an adorable 5 year old with Autism and Apraxia