Wednesday, November 26, 2008

Wonder ( Natalie Merchant )

I got a lot of messages on the mantra in my previous post
Seek Less... Do more
So I wanted to post one of the biggest sources of inspiration for me
One of my dear friends told me about this song ( she has a darling boy with special needs and knows some of the heartbreak and the joy of this journey )
Here are the lyrics to the song

"Wonder"

Doctors have come from distant cities
Just to see me
Stand over my bed
Disbelieving what they're seeing

They say I must be one of the wonders
Of god's own creation
And as far as they can see they can offer
No explanation

Newspapers ask intimate questions
Want confessions
They reach into my head
To steal the glory of my story

They say I must be one of the wonders
Of god's own creation
And as far as they can see they can offer
No explanation

O, I believe
Fate smiled and destiny
Laughed as she came to my cradle
Know this child will be able
Laughed as my body she lifted
Know this child will be gifted
With love, with patience and with faith
She'll make her way

People see me
I'm a challenge to your balance
I'm over your heads
How I confound you and astound you
To know I must be one of the wonders
Of god's own creation
And as far as you can see you can offer me
No explanation

O, I believe
Fate smiled and destiny
Laughed as she came to my cradle
Know this child will be able
Laughed as she came to my mother
Know this child will not suffer
Laughed as my body she lifted
Know this child will be gifted
With love, with patience and with faith
She'll make her way

[ www.azlyrics.com ]

Monday, November 24, 2008

And something else in November

Did want to add that while R has been having a lot of separation anxiety this month - he is really out of his funk developmentally speaking
And doing really well
The spark and with-it ness is back - the DAN doc had said that we would see a funky period when we started with the enzymes and probiotics and then over time it would go away and be replaced by lots of progress
And so it is
He has learned to use the mouse really well( as in for a just tunred 4 year old with fine motor problems ) - and he will find his websites on the computer ( I know not how ) starfall.com is his favorite one
he truly loves his computer now and we have to work hard to get him off it.
He is doing much better with imitating on songs
And we have the start of pretend play - very primitive but still ....as in he has bein doing things like the head shoulders song with Ernie
He is not making words but can still clearly read
I also got a demonstration of his visual memory when he arranged the letters of the alphabet - by first starting with QRST and then when I put P before Q he went all the way upto A and then when I put U after T, he went all the way to Z
Yesterday again he wrote Z aall the way to A
doign the alphabet backwards is really harder than it looks - try it

What happened in November

I I cannot believe most of November is already gone – Here is what we did

I actually went to the Floortime Conference – the ICDL one in Washington DC – It was amazing and I can honestly say it was worth the time and the money.

As an outcome of that - I also have nixed the idea of traveling up and down from Atlanta to continue meeting with the consultant – I did not get what I wanted from the one we met the first time – and I am not going to run around looking for more.

Its clear to me that I am doing the right things … just not doing them enough

Seek less… do more

October and November have been also the worst for me in terms of work related travel

R is soooo very anxious nowadays – he has always been a total Mama's boy. But right now his mama's boyness has an edge of franticness around it .

Seriously If he cannot see me – like for a minute-he runs around the house just crying and hunting form me desperately – tears rolling down his eyes … Its very stressful to watch.

He does fine- though MIL says he hunts for me a lot when I am actually not there .

For this reason I am terribly tense about a trip I am taking next week for 4 nights . Its sooo hard when your job takes a toll on the one you love so much


 

Floortime Lite Mama

On my life as the mother of an adorable 5 year old with Autism and Apraxia